This may be a bit long,,, sorry,
My daughter T was born when I was a married witness,I was almost 21.She was a very sweet outgoing loving child.When she was 4 I had another daughter S . LOL this one was my challenge when she was little but is now such a joy to me.
Anyway T began school at 5 and seemed to be doing well with school and her friends.
Just about a month after she began 1st grade we had stopped to eat lunch while out in service.T suddenly made a strange noise she looked off into space with a strange stare and wouldnt respond to anything we said or did.I was in a panic by the time she began talking again and told us that she heard us but couldnt answer us at that point.DEMONS?Was my first thought but as I began to ask her about it then i began to feel she had had a small seizure. I called the doctor as soon as I got home and he told me not to worry and to bring her in on monday,
I wasnt happy about this but did as he said.I told her to let me know if it happened again.It did once more before monday.I told the dr, what was going on and he told me that I was wrapped around her little finger but that if i was insistent he would schedual a eeg for the next week.NEXT WEEK?! I called around and got her an appointment at a clinic the next day for an eeg.
As this very sweet woman was doing the EEG i asked her if she could tell me what it meant.She said No you need a neuroligist (please excuse any spelling) for that.I said I dont have one, How do I get one? she said i could make an appt but it would take a couple weeks to get into see one I Got very upset....she pulled some strings and we left right then and went to a local neuroligists office. He did the EEG and she had a seizure while they were doing it.I thought ohh good now they can tell me.
He was a bit nervous about me not going thru my regular dr. I could tell ,and he told me it was like nothing he had ever seen before and so I just should ignore them.I couldnt do that so I began testing her durring her seizures and found she could remember what i was saying to her after the seizure but could not speak or move her left side durring the seizures. she was having one or two a day at this point.
I then went to the library and checked out books on seizures and the causes. Found out she was having complex partial seizures and often caused by brain tumors.I told dr. this but to no avail.About 2 weeks into this she bagan to fall backwards durring seizures andher eye would jump when having them. FINALLY dr said. hmmm no way she could fake that she needs to be in hospital till we figure this out.
So into hospital she went Dr. still convinced she was somehow faking and he tried to make her bring them on herself... she didnt. he decided to send her home on seizure meds.I said I wanted CT scan before she went home. Dr finally agreed to it.He said they would do a simple one and since the contrast they sometimes put in thru IV had some risks that they wouldnt use it unless they saw something.I was waiting there alone when the nurse came out and asked her weight so they could use the IV contrastI KNEW..... and tried to ask her but she wouldnt say anything. I paced the floors till the Dr. came and told me they had found a brain tumor. My mother in law who was there with me by then began hyper ventilating and so we had to try to calm her down all I could think of was what does this mean????? tell me more!!!!
wow im worn out will continue more later