An Eye-Opener Concerning Ovarian Cancer

by Frannie Banannie 14 Replies latest watchtower medical

  • Frannie Banannie
    Frannie Banannie

    THIS IS A MUST TO READ TO THE END P L E A S E!

    (Guys: pass it on to your lady).

    An Eye Opener on Ovarian Cancer

    I hope you all take the time to read this and pass it on to all you can. Send this to the women in your life that you care about.

    Years ago, Gilda Radner died of ovarian cancer. Her symptoms were inconclusive, and she was treated for everything under the sun until it was too late. This blood test finally identified her illness but alas, too late. She wrote a book to heighten awareness. Gene Wilder is her widower.

    KATHY'S STORY: this is the story of Kathy West.

    As all of you know, I have Primary Peritoneal Cancer. This cancer has only recently been identified as its OWN type of cancer, but it is essentially Ovarian Cancer. Both types of cancer are diagnosed in the same way, with the "tumor marker" CA-125 BLOOD TEST, and they are treated in the same way - surgery to remove the primary tumor and then chemotherapy with Taxol and Carboplatin. Having gone through this ordeal, I want to save others from the same fate. That is why I am sending this message to you and hope you will print it and give it or send it via E-mail to everybody you know. One thing I have learned is that each of us must take TOTAL responsibility for our own health care. I thought I had done that because I always had an annual physical and PAP smear, did a monthly Self-Breast Exam, went to the dentist at least twice a year, etc. I even insisted on a sigmoidoscopy and a bone density test last year. When I had a total hysterectomy in 1993, I thought that I did not have to worry about getting any of the female reproductive organ cancers. LITTLE DID I KNOW. I don't have ovaries (and they were HEALTHY when they were removed), but I have what is essentially ovarian cancer. Strange,isn't it? These are just SOME of the things our Doctors never tell us: ONE out of every 55 women will get OVARIAN or PRIMARY PERITONEAL CANCER. The "CLASSIC" symptoms are an ABDOMEN that rather SUDDENLY ENLARGES and CONSTIPATION and/or DIARRHEA. I had these classic symptoms and went to the doctor. Because these symptoms seemed to be "abdominal", I went to a gastroenterologist. He ran tests that were designed to determine whether there was a bacteria infection; these tests were negative, and I was diagnosed with"Irritable Bowel Syndrome". I guess I would have accepted this diagnosis had it not been for my enlarged abdomen. I swear to you, it looked like I was 4-5 months pregnant! I therefore insisted on more tests.They took an X-ray of my abdomen; it was negative. I was again assured that I had Irritable Bowel Syndrome and was encouraged to go on my scheduled month-long trip to Europe. I couldn't wear any of my slacks or shorts because I couldn't get them buttoned, and I KNEW something was radically wrong. I INSISTED on more tests, and they reluctantly)scheduled me for a CT-Scan (just to shut me up, I think). This is what I mean by "taking charge of our own health care."

    The CT-Scan showed a lot of fluid in my abdomen (NOT normal). Needless to say, I had to cancel my trip and have FIVE POUNDS assure you), but NOTHING compared to what was ahead of me). Tests revealed cancer cells in the fluid. Finally, finally, finally, the doctor ran a CA-125 blood test, and I was properly diagnosed. I HAD THE CLASSIC SYMPTOMS FOR OVARIAN CANCER, AND YET THIS SIMPLE CA-125 BLOOD TEST HAD NEVER BEEN RUN ON ME, not as part of my annual physical exam and not when I was symptomatic. This Is an inexpensive and simple blood test!

    PLEASE, PLEASE TELL ALL YOUR FEMALE FRIENDS AND RELATIVES TO INSIST ON A CA-125 BLOOD TEST EVERY YEAR AS PART OF THEIR ANNUAL PHYSICAL EXAMS.

    Be forewarned that their doctors might try to talk them out of it,saying, IT ISN'T NECESSARY." Believe me, had I known then what I know now, we would have caught my cancer much earlier (before it was a stage3 cancer). Insist on the CA-125 BLOOD TEST; DO NOT take "NO" for an answer!The normal range for a CA-125 BLOOD TEST is between zero and 35. MINE WAS 754. (That's right, 754!). If the number is slightly above 35, you can have another done in three or six months and keep a close eye on it, just as women do when they have fibroid tumors or when men have a slightly elevated PSA test (Prostatic Specific Antigens) that helps diagnose prostate cancer. Having the CA-125 test done annually can alert you early, and that's the goal in diagnosing any type of cancer - catching it early. Do you know 55 women? If so, at least one of them will have this VERY AGGRESSIVE cancer. Please, go to your doctor and insist on a CA-125 test and have one EVERY YEAR for the rest of your life.And forward this message to every woman you know, and tell all of your female family members and friends. Though the median age for this cancerous 56, (and, guess what, I'm exactly 56), women as young as 22 have it. Age is no factor.

    A NOTE FROM THE RN: Well, after reading this, I made some calls. I found that the CA-125 test is an ovarian screening test equivalent to a man's PSA test prostate screen (which my husband's doctor automatically gives him in his physical each year and insurance pays for it). I called the general practitioner's office about having the test done. The nurse had never heard of it. She told me that she doubted that insurance would pay for it. So I called Prudential Insurance Co., and got the same response.Never heard of it - it won't be covered.I explained that it was the same as the PSA test they had paid for my husband for years. After conferring with whomever they confer with, she told me that the CA-125 would be covered. It is $75 in a GP's office and $125 at the GYN's. This is a screening test that should be required just like a PAP smear (a PAP smear cannot detect problems with your ovaries). And you must insist that your insurance company pay for it. Gene Wilder and Pierce Brosnan (his wife had it, too) are lobbying for women's health issues, saying that this test should be required in our physicals, just like the PAP and the mammogram.

    PLEASE TAKE A MOMENT TO SEND THIS OUT TO ALL THOSE YOU CAN. BE IT MALE OR FEMALE, IT SHOULD NOT MATTER, AS THEY CAN FORWARD IT ALSO TO THOSE LOVED ONES THEY KNOW. IF YOU HAVE A PROBLEM WITH FORWARDING SOMETHING AS IMPORTANT AS THIS, HERE'S A LITTLE HINT THAT MAY ASSIST YOU WITH YOUR DECISION ~ JUST PRETEND THAT THIS IS A JOKE, WHICH IT CERTAINLY IS NOT, AND SEND IT OUT TO ALL THE FOLKS YOU WOULD IF IT WAS.

    THANKS.

  • seeitallclearlynow
    seeitallclearlynow
    I HAD THE CLASSIC SYMPTOMS FOR OVARIAN CANCER, AND YET THIS SIMPLE CA-125 BLOOD TEST HAD NEVER BEEN RUN ON ME, not as part of my annual physical exam and not when I was symptomatic. This Is an inexpensive and simple blood test!

    Ok Frannie, good tip! Now if I would only make myself go to the doctor more than once every 5 -7 years or so....

    But thanks! bttt

  • Undaunted Danny
    Undaunted Danny

    Check Mark My mate just read it thank you dear for posting this vital information.



  • cyber-sista
    cyber-sista

    Good reminder Frannie...thanks

  • wannaexit
    wannaexit

    thanx my friend,

    I am going to make an appointment to the doctor this week as I seem to have some of the "abdominal problems" mentioned in your post.

    I hope that things will go well with you

    Love

    Wannaexit

  • funkyderek
    funkyderek

    It took me less than 10 seconds to determine that this was false.

    http://www.snopes.com/toxins/ca125.htm

  • Odrade
    Odrade

    Funkyderek, in honor of your style... do you even know the meaning of TACT? You are unbelievably insensitive, rude and boorish.

    Yep, ladies, this is a very scary issue. But requests for this test have been overwhelming health care professionals ever since this email started going around. By itself it is a very unreliable indicator of cancer. In other words, you may have an elevated CA125, but absolutely NO prescence of cancer... just like the PSA test for prostate may show elevated levels even if no cancer is present.

    Much more reliable are your regular checkups. One thing it IS wise to ask for is the Thin-prep test on your PAP. Many docs/clinics offer this, and most insurance will now cover it. This test more reliably detects small changes (known as dysplasia), and the prescence of HPV (which can lead to cervical cancer) than the standard PAP test.

    In addition, if a person has other signs of cancer, other tests will be given, including the CA125 if necessary. If you have other signs of cancer, this test is unnecessary. Part of the problem is that it doesn't tell the doctor what type, where, what stage, or even IF it's actually cancer. With many false positives, people with no other signs have ended up with many (expensive and sometimes uncomfortable) tests run as a result of an elevated level. The other problem is that the test is notoriously unreliable as an early detection for people who HAVE cancer, reporting normal levels when, in fact, cancer is present but not yet making the ovarian changes necessary to pick up on this test.

    In addition, endometriosis and fibroids are often the culprits of a high reading. And there are plenty of women who have had surgeries for "cancerous" endo or fibroids when none was necessary--actually aggravating the problem--sometimes because of this test.

    FAR FAR better answer... make sure you have an HCP who listens to you. ESPECIALLY (I hate to say it) is this important if you are a minority, overweight, on antidepressants, or very poor/underinsured. A good doctor who listens is not going to be dismissive of your health concerns, and will do what is needed to take care of you. Do your breast self-exams every month. Report any unusual bleeding, or significant longterm changes in bowel habits. Report any cycle changes, including if your pain is very different on ovulation or during menses. Live healthy-exercise and eat a balanced diet--avoid chemicals when possible. Don't smoke. Don't move to Chernobyl...

    Be well,

    O

  • Frannie Banannie
    Frannie Banannie

    Thank you, Odrade....for a real eye-opener....glad you could correct this with good info. :)

    Frannie B

  • Soledad
    Soledad

    Odrade: you beat me to it.

    this email has been circulating the net for years. I had a copy of it stored in my hotmail account since 1998, the exact same one. I'm not suggesting that the story is false, but dont place all your bets on this blood test.

    http://ovariancancer.gog199.cancer.gov/index.html

    However, there are a significant number of women for whom surgery is not an acceptable option when it is initially proposed. For these high-risk women, current screening recommendations include the use of transvaginal ultrasound (TVUS) and periodic blood tests to measure the levels of a chemical in the body called CA-125. The goals of screening are to detect ovarian cancer at an earlier point in its development, to reduce the chances of dying from this disease. However, there is currently no scientific evidence to suggest that screening for ovarian cancer is effective in achieving these goals.
  • codeblue
    codeblue

    Good post Frannie

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