Hello, (((((((((((((((((JWD friends))))))))))))))))))),
Thank you so much for your kind expressions of sympathy and offers to help. I'm posting from my sister-in-law's computer, so probably will not be able to update you further until Monday.
My mom is still in the hospital, but we will bring her home with us on Sunday. We have arranged for her to have hospice care in my home. My oldest daughter drove home yesterday--had to work Friday and Saturday--and will be there to let the hospice people in with the necessary hospital equipment so it will be there when we arrive on Sunday. She was a big support to me and I'm glad I was selfish enough to ask her to miss some of her college classes to accompany me.
Mom has been refusing meds and has deteriorated from needing minimal assist to needing a two-person assist for transfers. Her myeloblast levels are at 33%, which means that she is staged at the highest (worst) level. She cannot communicate her needs too well, only about 1% of the time does a coherent phrase come through, but you can tell that she is understanding everything (when you make sure she is focussed).
Truth to tell, I'm terrified about the enormity of the task ahead, but I also want to do my best to make her feel loved and valued in the days she has left. Fortunately, because the doctor signed for hospice vs. home health care, I will be able to have respite care as well. I am hoping that I will be able to take at least some of next semester's classes and finish off the last two weeks' of this. Those of you who know Jann should know that she has also offered to sit with Mom so I can get through my exams. I am using the time at my in-laws today and tommorrow to study well, as I'm not sure how that will go once Mom is home. I think it will be okay, because she is exhausted and dozes. As long as I'm in the same room studying, I think we'll make out. Not sure how many hours of help I can request yet. I'm getting a crash course in Medicare/Medicaid and HHC vs. hospice, that's for sure!
I truly, truly appreciate all the reminders of why I love this online community. You guys are so supportive and loving, I can't thank you enough!
Love,
Brenda