Just made this one
konceptual99
JoinedPosts by konceptual99
-
42
Say it with memes!
by EdenOne ingot something to say about the organization, the "truth", the gb, the witnesses, the apostates, life and quantum mechanics?
say it with memes!
let's create a repository of memes on this thread, new old and whatnot!
-
-
38
We're Ashya Kings parents right?
by The Rebel indo you remember the case?
jehovers witness parents did a runner without telling the medical staff caring for their seriously ill child and took him to receive proton therapy in praque as this treatment was not available in the u.k.. first most importantly the good news, the boy was declared cancer free last march.. anyway i am sure at the time this issue would have created a lot of heated debate on the forum, as it was a case that created a media frenzy, with the parents and their jehovers witness religious beliefs being heavily critizised .
however as i followed the case i couldn't help but admire the parents, as i felt they would have acted indepentedly of both the jehovers witness organisation and the u.k medical advice, having in my opinion seriously thought the matter through, and then doing they thought was the best way for treatment.. so if you remember the case my questions are:-.
-
konceptual99
Not as far as I know. I don't think even the WTS would risk any sanctions getting out and making the news... -
18
90 minutes from Wembley ......
by The Rebel inwhich ever country you come from, if you are a football fan you know of the f.a cup.
because the f.a cup is the oldest and most prestigious cup competition in the world.
or at least that's the way it was when i was a kid.. now this wonderful competition has been cheapened to a non event.
-
konceptual99
The Beeb have done some great coverage this season of the non league teams being shown live look at Salford City FC's run having 2 matches televised live to the nation, that would never have happened even a few years ago!
Hence why the magic of rounds 3-5 remains for me. The Beeb and BTSport have done a good job there.
-
18
90 minutes from Wembley ......
by The Rebel inwhich ever country you come from, if you are a football fan you know of the f.a cup.
because the f.a cup is the oldest and most prestigious cup competition in the world.
or at least that's the way it was when i was a kid.. now this wonderful competition has been cheapened to a non event.
-
konceptual99
The final sells out because everyone loves a trip to Wembley to support their team.
Wenger's job has been saved as much by his ability to achieve CL qualification season after season thus securing wads of cash IMHO.
I still love the FA cup but no one can deny that managers regularly belie their words of support for the FA cup with their actions of fielding the B team. There is no longer the culpable magic there once was. Yes, if you are a fan and your team is progressing it's great but the whole country stopped come the end of May, the final was on both BBC & ITV and now it's a sideshow thanks to there being so much else to occupy people.
-
38
We're Ashya Kings parents right?
by The Rebel indo you remember the case?
jehovers witness parents did a runner without telling the medical staff caring for their seriously ill child and took him to receive proton therapy in praque as this treatment was not available in the u.k.. first most importantly the good news, the boy was declared cancer free last march.. anyway i am sure at the time this issue would have created a lot of heated debate on the forum, as it was a case that created a media frenzy, with the parents and their jehovers witness religious beliefs being heavily critizised .
however as i followed the case i couldn't help but admire the parents, as i felt they would have acted indepentedly of both the jehovers witness organisation and the u.k medical advice, having in my opinion seriously thought the matter through, and then doing they thought was the best way for treatment.. so if you remember the case my questions are:-.
-
konceptual99
Good post Nicolaou.
-
38
We're Ashya Kings parents right?
by The Rebel indo you remember the case?
jehovers witness parents did a runner without telling the medical staff caring for their seriously ill child and took him to receive proton therapy in praque as this treatment was not available in the u.k.. first most importantly the good news, the boy was declared cancer free last march.. anyway i am sure at the time this issue would have created a lot of heated debate on the forum, as it was a case that created a media frenzy, with the parents and their jehovers witness religious beliefs being heavily critizised .
however as i followed the case i couldn't help but admire the parents, as i felt they would have acted indepentedly of both the jehovers witness organisation and the u.k medical advice, having in my opinion seriously thought the matter through, and then doing they thought was the best way for treatment.. so if you remember the case my questions are:-.
-
konceptual99
Public opinion was tainted by some reports implying a link with the Kings being Witnesses. This quickly changed when the story changed to it being about the persecution of parents just trying to do the right thing.
The medical staff were demonised which clouded rational discussion of the facts.
-
24
Reveal News: "Jehovah’s Witnesses fight law on reporting child sex abuse to police" by Trey Bundy
by AndersonsInfo inhttps://www.revealnews.org/blog/jehovahs-fight-law-requiring-child-sex-abuse-be-reported-to-police/.
jehovah’s witnesses fight law on reporting child sex abuse to police.
trey bundy, february 1, 2016 .
-
konceptual99
This of course also makes a mockery of Jackson's plea to the ARC to take the responsibility off the organisation and enforce mandatory reporting. Where they have it they then argue they have ecclesiastical privilege.... -
10
Swedish Chef at February tv.jw.org Broadcasting
by Gorbatchov init seems the producers of jw broadcasting read my earlier post here at jwd.org about the swedish chef.. because they introduces the swedish chef in their program now.
.
the broadcasting is surprising me more and more every month, a must see (if you can).. compare:.
-
konceptual99
Love it! -
18
90 minutes from Wembley ......
by The Rebel inwhich ever country you come from, if you are a football fan you know of the f.a cup.
because the f.a cup is the oldest and most prestigious cup competition in the world.
or at least that's the way it was when i was a kid.. now this wonderful competition has been cheapened to a non event.
-
konceptual99
I know what you mean. When I was a boy the country stopped for the FA cup. It still retains it's magic I think during the 3rd-5th rounds but the final is not the event it once was.
Regardless I am not sure about the CL place for the winner. Are there any rules that determine how places for CL and Europa can be allocated?
-
38
We're Ashya Kings parents right?
by The Rebel indo you remember the case?
jehovers witness parents did a runner without telling the medical staff caring for their seriously ill child and took him to receive proton therapy in praque as this treatment was not available in the u.k.. first most importantly the good news, the boy was declared cancer free last march.. anyway i am sure at the time this issue would have created a lot of heated debate on the forum, as it was a case that created a media frenzy, with the parents and their jehovers witness religious beliefs being heavily critizised .
however as i followed the case i couldn't help but admire the parents, as i felt they would have acted indepentedly of both the jehovers witness organisation and the u.k medical advice, having in my opinion seriously thought the matter through, and then doing they thought was the best way for treatment.. so if you remember the case my questions are:-.
-
konceptual99
In answer to the OP...
I think Ashya's parents were right to push the medical team on the options possible. I have personal experience of the exact same team at Southampton General and, whilst they are excellent clinicians, it is never wrong to push them on what else could be done and the pros and cons of pursuing a particular option.
Were they right to go as far as they did? Not in the way they did it. Whilst they took many steps to try and care for Ashya they failed to keep the medical team onside which presented by far the biggest risk to his health.
Could I have done what they did? Perhaps. I am a parent. I have watched family members and others face terminal cancer and know exactly the emotions that run through you when wanting to do everything possible to take the pain and suffering away.
I have a family member who is in the same congregation as the Kings in Portsmouth and was closely involved in helping them in when Ashya was ill in hospital. From conversations with them, I don't believe that the Kings were acting completely rationally when they did what they did. I understand why they did it but it could have been handled in a much better way. The Kings are known, apparently, for being the sort of people who form an opinion, stick to it and don't really care what others think about it. If they believe they are right then they have the courage of their convictions to face criticism.
This can be an admirable quality. The problem is that your decisions have to be sound.
The fact was that the hospital had already done the biggest thing in saving Ashya's life - taken the tumour out. Medically, if the tumour had not been operable then the poor lad's prognosis would have been very bad. Surgery is the primary treatment. The standard protocol for supporting treatment for many cancers is radiotherapy and chemotherapy. The former is designed to try and destroy the cancer cells that remain after surgery. The latter is designed to help damage cancer cells and stop them replicating. Typically one would have a course of RT lasting a few weeks, maybe alongside chemo, then a following and longer time on chemo.
The desired outcome is that the tumour is prevented from returning. For some cancers it may be possible that this could be many years (e.g. 5-10+), for others it may be just a few months. This is complicated by many factors such as age, type of cancer, how advanced it is, surgical success, response to adjunctive treatment and so on.
The Kings naturally tried to find out as much as they could about RT and CT. The internet is awash with information on cancer. It ranges from highly medical and technical right through to some outrageous claims that have zero scientific backing. The biggest problem is that people are looking for the magic word "cure". Many cancers cannot be cured. You may have long term remission but many will come back eventually. The trouble is that much of the claims on the internet use the word cure or relate stories that imply a cure when in fact there is zero evidence to suggest the individual outcome would have been any different.
Many standard forms of RT will have side effects including swelling and nausea . Often a person will have to wear a constrictive head mask during treatment. I would expect that Ashya would need to be sedated each time, probably daily, to prevent him getting too distressed. The radio beam has to go through tissue to hit the cancer area and then carries on going. It will damage healthy tissue. Sometimes that damage can be permanent but not always.
Chemo is often horrible. I completely understand why the Kings would want to avoid this but the treatment is individual and there is no saying exactly how a person will respond. Not only that, often the statistics for longer term positive outcomes are directly related to the use and success of the chemo.
Proton Beam is just another form of RT. The benefit is that the way the beam is delivered means it does not travel past the point of focus. The effect on surrounding tissue is reduced therefore the side effects are less. It is still an emerging technology so determining the best circumstances for it's use are still coming out.
I think the Kings were right to try and get second opinions on the likely effectiveness of proton beam. The team at Southampton are world class - but they don't work with PB every day. The opinion of the specialists that it was inappropriate should have been questioned however this could have been done in a far less confrontational way. I think they were wrong to allow the situation with the medical team to get to the point there was such a loss of trust.
Frankly the Kings got lucky on this one. Perhaps the team at Southampton were wrong but if not then the PB would have been useless. In the end there was some collaboration between the doctors but the Kings did not know that would happen when they removed Ashya. If the PB has been as successful as standard RT likey would then that's great but it could have been different.
The refusal to use chemo is questionable IMHO. It's their decision but the empirical evidence is clear. Statistically it increases the risk the cancer will return more quickly.
The Kings continue to insist that they did the right thing both publicly and privately. They insist Ashya is cured and are using his current good progress to justify their actions. Their focus on PB as some kind of miracle procedure, refusal to try chemo and lack of caution when describing Ashya's progress reflect the parents personalities. I sympathise with their actions but my understanding is that Brett King is the sort of guy who does not like to back down. Cancer is no respecter of defiance and time will tell how well Ashya does.