I keep wondering if that's what I have? This tiredness started during one of my hospitalizations. Actually, I was being treated for out of control diabetes. My doctor comes in and says you know that your lymphocyte count is high. Your white cell count has been high for some time. She says I'm going to be contacting Dr. Moore (hematologist/oncologist). He runs some test and said that he didn't see any cancerous cells that it's probably a viral infection. Well the lymphocytosis continues after my dismissal and plus I developed neutropenia. The hematologist did a bone marrow biopsy, which shows lymphocytosis and neutropenia (but it's not high enough or low enough to call cancer). He says that it could be myelodysplasia. By this time, I'm starting to feel fatigued at work and having hot and cold flashes. I went back to my endocrinologist and she says that I'm going through menopause and puts me on Prempro. I still fill like crap. I end up taking sick leave from my job.
My lymphocytes are still high. The hematologist runs test for Epstein Barr. The test come back positive. Positive for a recent exposure, which is weird because most people have been exposed to the Epstein Barr virus by the time they reach adulthood. Most people my age have been exposed and will test positive for exposure to the virus, but not for a recent or current exposure.
So, here it is a year or more later and my lymphocytes are still messed up. They will not called it Chronic Fatigue Syndrome because of the elevated lymphocytes and Epstein Barr virus exposure. So, I could have something called Chronic Epstein Barr Infection.
I've got to find a doctor that specializes in this to get it diagnosed. I contacted the department of Human Health and Social Services because they are looking for people with this disorder. I'll let you know if they pick me for one of their testing programs.