Serious Question - Does anybody know anything about the disease MS?

by JWoods 16 Replies latest jw friends

  • drwtsn32
    drwtsn32
    Ha, drwtsn32, you must be a doctor! It's ok - I actually like some doctors.

    Actually I'm not a doctor. Not even close. :) I am a skeptical thinker with a strong interest in medical claims though.

    The good thing is that eventually, after listening to this 'anecdotal evidence' for several years, blind, double-blind and controlled studies are being 'considered' and from what I understand, already in the works re: the bee venom therapy.

    There is certainly nothing wrong with anecdotes leading to studies being performed. Who knows, it could work! But controlled studies HAVE been done on bee sting therapy, and they have been shown to be ineffective in helping MS.

    You bring up a good point about blinding the study though... it does seem like it'd be difficult to properly blind it. But they have figured out how to blind acupuncture trials..... so who knows.

    ... and then when things go sour and you have a 'couple of deaths', do a recall, and let the still living sue for 'damages'.

    Are you serious? The millions of dollars spent doing legitimate medical research is partly to help ensure something is not dangerous (not to mention truly effective). Do things sometimes slip through the cracks? Yes. But you don't really suggest that we go to a system where things are promoted without being tested, right?

    Remember, anything that affects your physiology has the potential to affect it negatively, too. That includes alternative treatments.

    The conspiracy is not to keep 'people sick'; it's to keep the drug cartels in business, whatever it takes...and PROMOTION is the key.

    There's no difference, IMO. It's still the idea that there's a conspiracy. The opposite would be to say the promoters of "alternative" therapies are trying to get rich without doing any real work. They probably didn't go to medical school, and they are promoting unproven and sometimes dangerous treatments. The are under almost no regulation by the government which I think definitely needs to change.

    Sorry to side track this thread...

  • Meeting Junkie No More
    Meeting Junkie No More

    Yes, sorry to sidetrack this thread...not my intention. I will hold myself back from carrying on, unless we start another thread!

  • sammielee24
    sammielee24

    I was tested for MS for almost 10 years because I had some complex neurological issues and MS can mimic a number of other health issues. Some forms of MS as others have said, are extremely slow moving and never get to the point of complete disability other forms do. Having said that, I would like to take the opportunity to point out that had I lived in the USA, I would not have had the same care available to me as I did in Canada because I would not have been able to afford the cost of specialists and brain surgeons alone, let alone the fact that I would have been tossed off the rolls after the first visit.

    I hope that they find out it is not MS and that she recovers completely....Montel Williams I believe, is one celebrity that uses many forms of therapy for his type of MS and he has some information out on the methods he uses. sammieswife.

  • metatron
    metatron

    I have considerable experience with MS. If you have a will of iron, I would suggest the Swank diet. I believe that the evidence in its favor is actually stronger than other orthodox treatments since it involves observation over a long period of time, which is always the problem with MS treatment efficacy.

    The ABC drugs are marginally effective and very expensive. The Lancet once questioned whether Copaxone does anything at all.

    Investigate estriol, curcumin, Zocor, and phytosterols. All may have a biochemical rationale for reducing exacerbations ( too lengthy to explain all of them here).

    metatron

  • ninja
    ninja

    Does anybody know anything about the disease MS?

    yep.........you start to think you could be an elder anytime soon.....and look down on the lowly publisher class........the plebs

    and you also start contributing inconsequential pish to unimportant committee meetings

  • Flarke
    Flarke

    I know two people with MS and they have it treated in different ways. One of my friends changed her diet and lifestyle-ie-no drinking, smoking, all raw foods diet, no meat, no processed foods, exercise, etc--in other words VERY STRICT! Another friend that has it just ignores it and goes on with her life. Both seem to be doing fine. I heard a big trigger for the numbness (caused by the lesions) is stress. Another interesting fact is that MS seems to be a northern climate disease; most people diagnosed live in northern climates... Interesting huh? There are lots of books out there with "pseudo science remedies" which I don't totally buy, but whatever helps someone get by who has MS is all good with me I guess. Anyway, sorry to hear about your friend J, just be there for them, thats the most important thing! :)

  • choosing life
    choosing life

    To be diagnosed with MS can literally take months to years. There has to be two distinct attacks (similar to what your friend describes) and multiple lesions, along with neuro exams that show deficits.

    Some doctors still do a lumbar puncture also.

    If you look under the Multiple Sclerosis Society on the web, you can find a lot of useful info. There is a section there called Limboland for people who have symptoms but are not diagnosed yet.

    One lesion can easily be caused by other things, so hopefully your friend will get better news.

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