Sheila, a very dear and close friend of mine died from ALS this past October 4, 2002.
She was an incredible human being, rare...and I miss her terribly.
She contributed to an on-line forum called: The March Of Faces.
She wrote articles, and I kid you not, they were hilarious.
I'm not sure, but I'm going to wing it: http://march-of-faces.org/
Look up Nina Neudorfer: she was one of the best friends I ever had (View From Here). There's a picture of her seated with a black cat in her lap, that's her. Pittsburgh's gift to the world.
Click on her stories, they'll leave you howling with laughter. When I last spent time with her, she was weaker, but still endearing. But I could really make her laugh. She always got a kick out of my Canuck accent, and my crazy assed stories from Atlantic Canada.
ALS is a disease/condition that often gets over looked. It is very insidious and can creep up slowly or quickly, rendering a once productive person, practically physically disabled and mute.
Thanks for that post Sheila, I think of Nina, almost every second of my day.