I'm putting the below information on this forum first to get YOUR input.
So my 9 year old Leukemia survivor wants to do his science project searching for the cause of leukemia in children. The data required to put together a semblance of a cause is vast to put it lightly.
I was thinking of putting feelers into the ether (Twitter, Facebook, LinkedIn) to see if we could get enough people to volunteer their family and children's history to have a shot at seeing some sort of pattern. After the science project I was thinking of continuing this research by developing an app or online questionnaire where survivor families volunteer their information. Reaching out to other families like mine by using targeted social media algorithms. The cause is the great unknown of this disease as medical privacy laws such as HIPPA due to litigation understandably prevent the free exchange of information.
I'm seeking forum members feedback. Do any of you see holes, roadblocks, or potential risks in such an endeavor?