Autism Times six.. on discovery health

by Cc81 92 Replies latest social family

  • LDH
    LDH

    St Ann,

    I reversed the situation of your children. I thought you had one special needs child.

    I would say my special needs children, who may be RELATIVELY happy, are happier than my normal son and I are because they have not been raped by the WTS. Isn't everyone only RELATIVELY happy, relative to their situation in life?

    Of course, however you must acknowledge that the is a greater possibility of acheivement of normalcy in children who are not special needs.

    Look, I'm not trying to beat anyone up over their personal choice. Yes I believe that if the mother and father are over the age of 40, serious concern should be given to the what ifs?

    When I was 16 one of my mothers friends (JW) got pregnant. She was 48. All we heard about for weeks was Miriam crying her eyes out. She finally spontaneously miscarried. The baby had only a head and one arm and a torso, and she had hydrocephaly. She knew this. She did not get an abortion for obvious reasons. Everyone thought Jehovah delivered her from having that child. Praise Jehovah! What a hateful god.

    The human body is not perfect. I have two children and my choice would be not to parent a child that I knew for a fact was significantly handicapped. ooohhh I know I'm the only heartless female that will admit that. I don't wait for Sky Daddy to 'bless' me with children. I know how babies are made, and I know how to MINIMIZE....not eliminate....the possibility that I will be a lifelong caregiver for a child with significant abnormalities.

    That's not what I want. Personal Choice. All children are parasitic in nature, feeding off of host parents for years. I just want a definitive end to that. I am entitled to my life too!

    I sure as hell don't want some Sarah Palin telling me what to do.

    However, given the number of babies who've been killed by abortion these past 30+ years since Roe V. Wade and the current war on the disabled, science has actually helped people to hone their animalistic tendencies and squelch their humanity, all in the name of "progress."

    The number of LIVING babies subjected to abuse, neglect, and the foster care system all so you bloodguilty God can feed his followers a diet of denial far outweigh the animalistic tendencies of women who RESPONSIBLY seek to end pregnancy.

    No I have never done it, but if I (we) felt the need to go forward, I would not miss a beat. I've given enough of my life to deprival and dysfunction. I'm going to enjoy what's left.

    LDH

    Still a Bitch Class

  • AnneB
    AnneB

    LDH

    Still a Bitch Class

    The bigger they are the harder they fall.

  • sammielee24
    sammielee24
    Asperger’s syndrome

    Which is itself a very controversial issue...

    sammieswife.

  • Princess
    Princess

    My twelve year old son was just diagnosed earlier this month with Aspergers and ADHD. In first grade he took an IQ test where he scored in the genius range. He's always been different, it wasn't until probably three years ago that we started thinking aspergers rather than just generally a weird smart kid.

    I used to think vaccinations were a contributing factor until my son, nephew and brother were all diagnosed with aspergers. Now I think it's quite possibly genetic. The fact that this family has six autistic children supports that theory. If my son had been diagnosed as a baby, I probably wouldn't have had another. He wasn't and I did. My daughter is not in the spectrum and thinks her brother is profoundly weird and a pain in her ten year old ass. Not having another baby would have been a huge mistake. Having said that, I would not have another because 1. I don't want another and 2. I don't think I could handle another ass burger without being on meds myself or drinking more than I already do.

    I have no idea what's going to happen with my son. After six years in the public schools, some good, some bad, I'm coming to the conclusion that he probably is going to have to have specialized education to finish his schooling. I don't know what that means. The administrators tend to try for the least amount that they can get away with (a 504 plan) and the last time I told them to even pretend that was going to work was a waste of everyone's time. He needs an IEP and we won't settle for less. The school counselor seemed profoundly butt hurt by that, but she doesn't get daily phone calls and emails from me complaining about her kid's behavior, so I honestly don't care and she better be moving on with the IEP BS.

    He's a genius in the local school district's highly capable program. The teachers don't know how to talk to him and as a result, they usually end up frustrating him and things go downhill fast from there. I get phone calls and emails from the teacher and dean almost daily. I spent yesterday afternoon crying in the dean's office (which was mortifying). I finally reached my breaking point. As we were driving home, I told Rhys I wanted him to come with me to kickboxing because we both needed to kick the sh*t out of something. He agreed. We had a great time. School's out in an hour and I haven't heard a word from anyone. A good day indeed.

  • mrsjones5
    mrsjones5

    Reading the last two pages of this thread brought this quote to my mind:

    Ghost of Christmas Present: But if he is to die, then let him die and decrease the surplus population.
    Ebenezer Scrooge: You use my own words against me?
    Ghost of Christmas Present: Yes! So perhaps in the future you will hold your tongue until you have discovered what the surplus population is and where it is. It may well be that in the sight of Heaven you are more worthless and less fit to live than millions like this poor man's child.
  • Quandry
    Quandry

    StAnn said:

    When your grandparents or parents get elderly and have to go on Medicare and Medicaid and are in a nursing home, I'll send the Feds a letter telling them that I don't feel like paying for nursing care for these old, unproductive, useless eaters.

    My grandparents and parents are all dead. None of their nursing care was paid for by public funds, because they all worked very hard and saved for retirement and nursing home needs.

    My dad was a Marine-he fought in WWII, Korea, and went everywhere around the world. When he retired after twenty-three years, he got a job elsewhere. While he looked for the job, we slept on the floor in sleeping bags and ate government K-rations in cans left over from his military days. They always saved money, and were thrifty-never wasteful.

    My husband and I both work full time. My daughter is a full time student, and works also. We still don't make very much (my husband and I bought into the JW no education thing) but we pay our way, being also thrifty and never wasteful.

    My husband works at a drugstore, and endures many patients who drive up in the latest model SUV talking on cell phones, while getting medicaid prescriptions. Sometimes, they won't buy needed medicine for their children, if it comes out of pocket.

    I work at a school. I love kids, work with those that need help, and I know what I am talking about.

    I am not saying don't help kids who need it, just that people need to be responsible- don't have more children that you can't take care of, then expect someone else to do it. Eventually, society can collapse under such a weight.

    My opinion, StAnn-I am entitled to it.

  • LDH
    LDH

    Ann I wouldn't know about failure. It's not in my vocabulary. Ask Teejay.

    Oddly enough it's usually the women that have a problem with me being extremely decisive. Hmmmm....

    My husband works at a drugstore, and endures many patients who drive up in the latest model SUV talking on cell phones, while getting medicaid prescriptions. Sometimes, they won't buy needed medicine for their children, if it comes out of pocket.

    {RANT}Quandary I KNOW you are telling the truth. A very close friend of mine is a Nurse Practitioner in an OBGYN practice, we were just talking about this. She told me women will call on a Friday with a yeast infection, she will tell them go buy Monostat over the counter (it's $15 bucks maybe?) and they say NO I WILL WAIT FOR AN APPOINTMENT. So out of her mouth--when she sees them four or five days later and their cooch looks and smells like rotten meat, they don't care. They want a free prescription. But they all go out and party Friday and Saturday night. [RANT}

    Rachel my sibling has disorders similar to the ones you speak of with your son. I think that is part of what convinced me as an adult that IF I HAD A CHOICE I would not bring a child like that into the world. I know what you're going through.

    Besides the fact....when mom and dad die, do you know what happens to these 'kids' --I do because I see them all over. They live in a group home environment where they are warehoused.

  • LDH
    LDH

    PS Rachel, re: your daughter.

    It's very hard on the other kids--ADHD, Aspergers, all of that -- because the child with 'needs' gets the lion share of the attention....... I know you're a good mom so just make sure she has her own time and space away from him.

  • LDH
    LDH
    He needs an IEP and we won't settle for less. The school counselor seemed profoundly butt hurt by that, but she doesn't get daily phone calls and emails from me complaining about her kid's behavior, so I honestly don't care and she better be moving on with the IEP BS.

    Stop at nothing to get an IEP.

    My best girlfriend has her Master's Degree in Special Education. She fought so hard for her own son to get an IEP she lost her job and now commutes to a different school district 90 minutes north of Fresno.....but damned if she didn't get that kid an IEP and I went to a LOT of those meetings and fought for NIck too. He's a senior this year and he is a wonderful story to see unfold.

    I remember days of her giving him two benedryl at 6 oclocck at night because if she didn't, none of them would get sleep.....fits of anger, frustration, they almost let him die when he had an asthma attack that they called a temper tantrum.....

    Anyhow, with the help of medicine, therapy, and an IEP it looks like he may be on his way to college this fall. She's aged 30 years in 20.

  • mrsjones5
    mrsjones5

    This is the last time I will be posting anything about autism on this board. I think I should find another place with a bit more compassion.

    AUTISM - WHAT IS IT ABOUT, HOW TO DEAL WITH IT?

    June 6, 2007 · No Comments
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    AUTISMAutism is a puzzling disorder because it is difficult to understand the behaviors of autistic people and because the world is as confusing for them as it is to us. Thus we have to learn to live with one another because it seems to be becoming more common among us.Autism affects more boys than girls. Ratio 4:1

    There are Five Pervasive Developmental Disorders (PDDs)

    Childhood Disintegrative Disorder (CDD)

    Rett’s Disorder (RD)

    Autistic Disorder (AD)

    Pervasive Developmental Disorder - Not Otherwise Specified (PDD-NOS)

    Asperger’s Syndrome (AS) - high functioning autism

    Although the word “autism” was first used publicly by the Swiss psychiatrist Eugen Bleuler around year 1911, criteria for the syndrome did not exist until Leo Kanner laid them down around 1943. Autism appears to have existed throughout recorded history. It occurs in all ethnic and social groups. Knowledge of autism has improved greatly over the years in some countries, although there is no known cure. It means “SELF”.

    It is still not known what causes autism but recent research, is pointing increasingly in the direction of its being a difference in brain structure, especially in the amygdale, from what is considered normal. Genes might also be involved. Brain abnormalities may result from genetic (hereditary) or environmental (e.g., exposure to toxins) factors, metabolic disorders (e.g., serotonin deficiency), viral infections (e.g., German measles), or complications during pregnancy and delivery.

    It is definitely not caused by poor parenting as was once believed.

    Autism is effectively a developmental disability. An autistic person will have significant difficulties in several areas of his/her development. The areas most affected are communication, social interaction and behavior. This developmental disability may have a particular pattern called autism, or there may be varying amounts of disability in other areas of development which result in patterns called Asperger’s syndrome or Pervasive Developmental Disorder - Not Otherwise Specified (PDD - NOS). This whole area of autistic developmental disabilities is referred to as “autism spectrum disorders”. People with these disorders are affected differently, but all require specialized assistance and support. The best way to help a person with an autistic disorder is to understand how the following three areas of difficulty affect their view of the world.

    · COMMUNICATON : Autism affects the ability of a person to understand the meaning and purpose of body language and the spoken and written word. Words can be misunderstood, interpreted literally or not understood at all. Other people’s feelings and emotions can also be difficult to understand.

    · SOCIAL INTERACTION : Social interaction is an essential part of life for most people. For autistic people, being sociable is difficult, scary and very confusing. Some appear to withdraw and become isolated; others try very hard to be sociable but never seem to get it right. People with autism can find friendships difficult.

    · BEHAVIOUR: Impairments in Communication and Social Interaction produce a range of behaviors that have become linked with autism spectrum disorders. These may include:Some early infant behaviors can clue parents in to potential problems before a formal test or a pediatrician (child doctor) visit might. Please note that seeing any or several of these does not necessarily indicate autism, but once you detect a pattern of the behaviors below to consult a developmental specialist.

    Around 6 months to 12 months:

    - Not babbling much

    - Not making eye contact with parents during interaction - Not smiling when parents smile (parents shouldn’t have to touch the baby to elicit a smile)

    - Not participating in vocal turn-taking (where the baby makes a sound, you imitate child; child then makes the sound again, and so on.)

    - Not responding to peek-a-boo on a regular basis

    Around 6 months to 36 months:

    - Speech - absent, delayed or showing abnormal patterns, no attempts to speak

    - Cannot feel pain, no emotions to pain, high trash-hold of pain

    - No pointing, waving or grasping - No response when called by name; indifference to others

    - Obsessions -intensive interest with favorite topics, objects, places, people or activities.

    - Insistence on sameness - routines bring some order to the autistic person’s confusion - a change of routine can be very difficult to cope with.

    - Repetitive Body movements - such as rocking, hand-flapping, tip toeing

    - Behavior that may cause self injury (such as hand biting). head-banging, hand-biting, wrist-biting and excessive self-rubbing and scratching. Behaviors often associated with seizure activity include: headbanging, slapping ears and/or head, hand-biting, chin hitting, scratching face or arms, and, in some cases, knee-to-face contact

    - Fixations on a single object or clothes. For clothing, child might insist on wearing the same clothes the whole day, the whole week, the whole month, etc.

    - A strong resistance to changes in routine. They might get upset if the gate is not closed properly, the chair is off by one centimeter off normal position, your shirt is not buttoned, your dress is not pressed, etc.

    - Sensory sensitivities - to certain sounds, colors, tastes, smells, textures. - Oversensitivity to certain textures, smells or sounds - Loss of any language skills - Play - isolated, repetitive, unimaginative, destructive, obsess in stacking things up, lining things like a train, spinning things, using anything like drums

    - Tantrums - can be a way of expressing extreme confusion and/or frustration, screaming, banging head or other types of self mutilation / destruction, jumping - Problems sleeping, likes dark places

    - Don’t like noise or certain sounds

    Autism Treatments

    There is no cure for autism, and there is as yet no standard of care. But while scientists search for biological and environmental factors that may predispose a person to the disorder, a few treatments have made a difference for some children.

    Behavioral therapy

    One of the most widely used programs is Applied Behavior Analysis, which focuses on reducing specific problem behavior such as aggression and self-injury while also teaching new skills and showing children diagnosed with autism how to handle changes in their environment. (Another reason why an individual may engage in head banging is to reduce pain such as pain from a middle ear infection or a migraine headache (de Lissovoy, 1963; Gualtieri, 1989). There is growing evidence that pain associated with gastrointestinal problems, such as acid reflux and gas, may be associated with self-injury. In addition, some autistic individuals report that certain sounds, such as a baby crying or a vacuum cleaner, can cause pain. In all of these instances, self-injury may release beta-endorphins which would dampen the pain.)

    The Picture Exchange Communication System (PECS) - The exchange of a picture to communicate

    This system was developed to help people with autism and developmental disabilities who are nonverbal or have limited verbal communication. PECS may also be used in conjunction with a voice output communication device. The Picture Exchange Communication System (PECS) when introduced and practiced rigorously is proving very useful to develop communication, particularly in children with autistic spectrum disorders. The basis of the whole thing is that when a child reaches for something they really, really want, something they love, then the thing they love in picture or photo is introduced in between the child and their “reached-for” desired object or activity. When the child then gives the adult the picture, the adult immediately gives them the thing (or activity) they want. This exchange can take place very quickly, when children are not physically disabled. The process works up from very simple requests to use of complex sentences (in pictures and/or words) but is always based on the exchange principle. The exchange process is a lot easier to describe than to do correctly! The PECS system is a behaviorist - using rewards to reinforce desired behaviors, aim of errorless learning, formal techniques for extinguishing errors, etc - and hightly structured. Each step in the instructional process is broken down into about 6 highly detailed stages. As well as being a behaviorist instructional approach, PECS is also a specialized form of augmentative & alternative communication AAC. Functional communication is emphasized and prioritized, ratherthan ‘language’ or curricular targets. There are no prerequisites to entry to this method of communication instruction (e.g. picture recognition and symbolic understanding are not required before the start - they are expected to develop throughout the process). All modes of communication are accepted, speech attempts must not be insisted upon (but improved oral speech often occurs, with PECS). PECS is often used alongside the TEACCH approach; it is not an ‘either/or’ scenario.

    Medication

    Medication is often used to deal with a specific behavior, like self-injurious tendencies or aggression. Reducing such behavior may allow the person with autism to focus on other things, like learning. Doctors have had success prescribing drugs typically used for obsessive-compulsive disorder, schizophrenia and attention-deficit hyperactivity disorder. (Naltrexone and naloxone)

    Occupational therapy

    This kind of treatment helps children develop daily living skills, fine and gross motor development, and sensory integration.

    Praises, Encouraging comments

    Try to praise, encourage the child instead of showing face of disbelieve when child takes the wrong item or say the wrong thing. Use positive words to encourage confidence in timid child! Praises should come in different forms: example, “good job, well done, excellent, you are so smart, I like that, genius, so brainy”, etc. Encouragement can also come as a physical tap on body parts, example, tap the child on the shoulder, on the head, on the hand, etc. You can also use food or toy rewards to motivate the child. Remember to use the things that the child likes very much, (if appropriate). Try to change the reward so that the child doesn’t get sick of it.

    Speech therapy

    This can help some people with autism overcome communication and language barriers.

    Special diets

    There is growing interest in the link between autism and gastrointestinal (GI) ailments. Eliminating certain foods from the diet can help some children. Easing the pain and discomfort of food sensitivities that many autistic kids have can free them up to focus on other things. Starting child on a restricted diet, such as a gluten/casein-free diet, or removing specific foods to which their child showed signs of an allergic reaction. (People with autism are often intolerant of gluten, a protein in four types of cereal, and casein, a protein found in animals’ milk.) Gluten and gluten-like proteins are found in wheat and other grains, including oats, rye, barley, Turkish’s bulgur, durum, Egypt’s kamut and spelt, and foods made from those grains. They are also found in food starches, semolina, couscous, malt, some vinegars, soy sauce, flavorings, artificial colors and hydrolyzed vegetable proteins. Casein is a protein found in milk and products containing milk, such as cheese, butter, yogurt, ice cream, whey and even some brands of margarine. It also may be added to non-milk products such as soy cheese and hot dogs in the form of caseinate.

    Sound therapy

    Classical music, sound of the sea waves, sound of water, chants, soothing music have been shown to encourage improvement in the way the brain processes input for some kids with an autism spectrum disorder.

    Educational programs

    These vary widely, but are most effective when tailored to the needs of the individual. Most are aimed at helping children overcome problem behaviors.

    CONCLUSION Autistic adolescents and adults are people you might encounter every day but not know it. There are many things you might think about them, but often they are not true.Some of them may appear selfish, self-absorbed, crazy or egotistical because autistic people do not respond adequately when someone says something, or because autistic people talk on and on about one subject with little regard to the rest of the conversation. Some of them might appear like loners, or eccentric loners. Some of them might appear as the opposite, people who try hard to be social but don’t know how.Autistic people come from all different backgrounds, and have all different appearances. There are the high-functioning, low-functioning, anything in between, and any combination of functioning levels. Different people might classify autistics as different functioning levels depending on when and where they see them. Some of them wouldn’t appear different at all until you got to know them. They may have been lower-functioning, or higher-functioning, or the same level of functioning, as children. Their skills might fluctuate dramatically. They present their autism in as many ways as there are autistic people, and have as many opinions about it. They may have high-paying jobs, or low-paying jobs, or no jobs at all. The thing they all have in common is that they are autistic. They may not always appear like the child that so many people have heard of, who rocks and bangs his head on the wall and does not make eye contact and is completely mute and will never speak and lives in an institution. They may not appear like the “Rainman” savant who does complex calculations in his head but is otherwise autistic. They may not be Einstein or the Silicon Valley computer programmer stereotype. They may look like these things sometimes but not others. But they are autistic. They share some of the same difficulties and the same advantages in being autistic. They have differences, yes — everyone does — but they do have that in common. The next time you think of autistic children, remember that children grow up. The next time you think of someone who you get furious with because they just “don’t get” something simple even though they can do some things that are complicated, remember them. The next time you see someone walking down the street flapping their hands in front of their face and making odd noises, remember them. They may not be autistic, but you never know. Autistic children grow up, into autistic adolescents and autistic adults. They do not appear always the same as autistic children, though they may have a lot in common with them that may or may not be visible to someone unfamiliar with autism.

    We should learn to be more compassionate to them and their families, rather than just stare at them or criticize them for being being brought up badly, because they are not!! Every parent would want the best for their children, but because we do not know much about them, we are not able to help them much. REMEMBER, THEY DON’T WANT TO BE BORN THIS WAY.

  • FlyingHighNow
    FlyingHighNow

    Mrs. Jones, try to look at the posters like St. Ann, others and me, rather than focusing on the posters who are a bit lacking in compassion.

    This is very profound:

    Ghost of Christmas Present: Yes! So perhaps in the future you will hold your tongue until you have discovered what the surplus population is and where it is. It may well be that in the sight of Heaven you are more worthless and less fit to live than millions like this poor man's child.

    Please do post about autism. There are people who would love to know more about it. There are people who need to know more about it.

    Compassion. I have a relative who seems to have little compassion. She tells everyone, who will listen, how responsible she is. But on closer examination of her life, she isn't always so responsible. Another thing about her: her self esteem is very rocky. And for those who lack compassion and constantly tell us how responsible they are, it's often a matter of rocky self esteem. The attitude betrays a sadness and anger, buried deep within.

  • Witness 007
    Witness 007

    We had a NEws report on Autism being cured thru diet and Omega fatty acid suppliments....this should be further researched.

  • LDH
    LDH

    No one said you should kill your child Mrs. Jones.

    What I am saying is, if *I* had prior knowledge, through genetic testing or ultrasounds or whatever the case may be....I would personally choose not to carry that child to term.....knowing that I PERSONALLY will be the majority party responsible until I die. YES I have had genetic testing and yes, my husband and I were relieved that everything appeared to be normal. Why you take that so personally is beyond me.

    If, despite my best efforts, I had a child with significant health or mental issues, I would do my very best to take care of that child in every way possible, which is what most people do.

    It was never meant to be a personal debate about whether you should have had a child.

    Besides, most mothers who choose to abort a fetus with significant problems won't feel at ease to talk about it, what with all the Christian Super-mom (I call 'em martyrs) wandering about.

  • LDH
    LDH

    Mrs. Jones, try to look at the posters like St. Ann, others and me, rather than focusing on the posters who are a bit lacking in compassion.

    Yes, make sure to avoid conversation with ANYONE who has a different perspective than you have. This will help to stagnate your brain, which is a desireable trait. Also make sure to take everything personally, as though the poster on the other end of the screen knows you PERSONALLY and wishes to cause you emotional pain.

    Coincedentally, this is a comfort, I'm sure, as many XJWs also can't take hearing anything other than their perspective (just like JWs). Anything else pains them to the bone.

    Laughable.

  • Quandry
    Quandry

    No one is talking about murdering children or adults.

    We are talking about making responsible, well-informed reproductive decisions.

    How you make the leap of logic to eugenics is beyond me.

    Yes, LDH, that is correct. The family in question is Mormon, or seems so because of the children's names, and the mom's comment that she wanted to bring souls from heaven.

    Responsible decisions is the theme here. Please do not tell me that this man and woman had no inkling before the sixth child was born that there was something very wrong. If the older ones are non-verbal, at about three to four years old, that is A CLUE. Then, if they can't be potty trained by four, ANOTHER CLUE. Yes, once children are here, we must accomodate and help them to achieve all they can.

    I know a family that have a downs syndrome son-he is about forty-five years old, with multiple health problems. The mother and father are now in their seventies, with their own serious health problems. Who will take care of him when they are gone? He is like a child and can't function on his own. What if they had five more?

    That the family in question should have made better decisions is bourne out by the fact that the poor woman is a basket case and can't get by without prozac. The man can't even work anymore. Yes, now society will be supporting the whole family.

    Maybe those that feel in an especially accepting mood should find out where she lives and go help her clean the feces that some of the kids evidently happily smear around the house. How many days could we keep it up before some sort of breakdown?

  • FlyingHighNow
    FlyingHighNow

    I suggest to Mrs. Jones not to focus on posters who lack compassion. I haven't told her to skip over your posts. You don't feel the same way I do about everything. Who expects all people to agree on every subject?

    It's easy for any of us to criticize people for their decisions, yet all of us make decisions that come back to bite us. We all do. No one is immune. Just as soon as we feel smug, we turn around to make our own blunders, be they big or be they small. No human being is immune to foolish lack of foresight.

    Me? I chose not to have six kids. My mother had six kids that she was not equipped to raise by her self. I didn't want to end up in the same kind of predicament as Mom. Am I critical of people who don't seem to have the same luck with family planning that I did? No. Am I critical of people who plan to have many children? I try not to be. Do they puzzle me? Sometimes they do.

    We live in an incredibly complex, diverse, wonderful and screwed up world. There are challenging people and circumstances everywhere you turn your eyes, including your own mirror...my own mirror. It's just not a perfect world and complaining about people whom we judge to be irresponsible will not change anything.

  • mrsjones5
    mrsjones5

    I know a family that have a downs syndrome son-he is about forty-five years old, with multiple health problems. The mother and father are now in their seventies, with their own serious health problems. Who will take care of him when they are gone? He is like a child and can't function on his own. What if they had five more?

    That the family in question should have made better decisions is bourne out by the fact that the poor woman is a basket case and can't get by without prozac. The man can't even work anymore. Yes, now society will be supporting the whole family.

    Maybe those that feel in an especially accepting mood should find out where she lives and go help her clean the feces that some of the kids evidently happily smear around the house. How many days could we keep it up before some sort of breakdown?

    So tell me, when are you going over there to help the poor parents? So funny. Ah but I can sympathize and be compassionate towards those folks because my parents are in the same situtation...well maybe not the income part. My brother, who is five years younger than myself, was in a swimming pool accident when he was barely five years old. It may surprise you folks but some children become disabled by means other than enviromental or genetics. He survived the drowning but just barely, he cannot walk, talk, wipe himself, or function as a normal 38 year old man. He is basicly a five year old child. Oh but don't worry about your tax dollars being wasted on his useless life. My parents were able to sue and acquire a trust for my brother that will take care of him until death, if he happens to outlive my parents. Oh and by the way, yeah I've wiped his ass and cleaned up the feces smears that he's happily made myself too.

    Josie

  • Iforget
    Iforget

    This is a blog post that I wrote less than a month ago. Thought I would share it here with you. My little girl has Down syndrome, a catastrophic seizure disorder, on mulitple medications, a Ketogenic diet to control her seizures. I'll save her picture until the end and then you will realize how shallow some of you on this thread have been.

    I was so angry last night when I went to bed that, I could not sleep. I had fights in my head - which I kinda like because I win all of those. Reading our local paper, blogs from around the country and national news makes me want to SCREAM in frustration.

    Let me liken it to this. Children are a work of art. ALL children. I have been busy painting both of my children. I have mother’s intuition and the deep selfless love for my children that is required.

    My son came with his own paint set and it was typical. 46 colors, some brighter and some I had to add water to and some he has not used yet.

    My daughter - well she came with one more color. She came with 47. I had to learn how to work with that 47 th color so that she will have a full and productive life. The rest of the world judges her extra beautiful color in different ways. Some see it as a “defect” some see it as an enhancement. The people that I surround my studio with see it as just a part of who she is.

    You have to know and feel love to be able to truly see the 47 th color as it should be seen. And because of my age I did indeed have genetic testing. CVS - which is accurate 99.99% of the time was WRONG. We are in the text books. We are the couple spoken of at medical conferences. We are your .02%

    You dare walk by MY gallery and judge my painting? You are a drive-by observer who has NO idea about my canvas, style of art or love. Put down your poison pens and just leave those of us with the 47 th color, along with those who can truly see the beauty of our art, alone to work. You (and you know who YOU are) take the time to reduce a child, a son/daughter, grandchild, sibling, niece, nephew, cousin, loved and cherished member of a community down to an extra chromosome?? A Down’s child. A Down’s syndrome baby. Her Down’s kid. ARE YOU FREAKING KIDDING ME?? AAGGGHHHHH

    In effect, you have reduced a HUMAN BEING down to a tiny extra piece of DNA, which is exactly why over 90% of babies diagnosed with Down syndrome are aborted. You are liars. You are uneducated. You are haters. You have no idea how to paint. You can’t even begin to know how to see the 47 th color.

    To reduce my child down to her extra chromosome begins a slippery slope that leads directly to Nazi Germany. Remember that leader? Yeah he could not see many colors even in the traditional 46-paint set. We know where that led.

    She is a little girl. She is a daughter. She has a name. She is a human being. I have educated you on people first language. Now go away and leave me alone, I am painting.

    http://i34.photobucket.com/albums/d145/Larkin05/DSC_6269.jpg

  • LDH
    LDH
    I suggest to Mrs. Jones not to focus on posters who lack compassion. I haven't told her to skip over your posts

    I like how discussion of a subject, and statements made about responsible reproduction by myself and others have led you to judge that "WE" are not compassionate.

    Outrageous.

    In effect, you have reduced a HUMAN BEING down to a tiny extra piece of DNA, which is exactly why over 90% of babies diagnosed with Down syndrome are aborted. You are liars. You are uneducated. You are haters. You have no idea how to paint. You can’t even begin to know how to see the 47 th color.

    To reduce my child down to her extra chromosome begins a slippery slope that leads directly to Nazi Germany. Remember that leader? Yeah he could not see many colors even in the traditional 46-paint set. We know where that led.

    Human beings ARE DNA.

    If you want to stick your hand in the bin with your eyes closed and pull out the acrylics on sale, and you can be satisfied with whatever colors you pull in your hand, so be it.

    I chose and would still choose to SELECT the colors with which I paint. Beauty is in the eye of the beholder.

    I don't condemn anyone's personal choice. I see you are unable to return the favor. I guess you want everyone on the pity train, or everyone to swoon over what a great mother you are. Yes, I have experienced this phenomenon FIRST HAND, and my husband and I are helping to pay the price financially as well as emotionally because of a very damaged family member whose mother ran out of steam to care for her. I don't accept the "I'll take whatever God hands me, because he would never hand me more than I can handle." argument.

    I call bullshit. Even with modern science, pregnancy is STILL a lottery, and when children are born healthy most parents I know breathe a deep sigh of relief.

    And after reading this thread, I now know for a fact I would crawl on my hands and knees to get an abortion of a genetically or physically compromised baby. If, despite genetic testing I had a child that had ANY health issues, I would get sterilized and then do my best to take care of that child.

  • LDH
    LDH

    Oh PS. I forget.

    My little boy's schoolmate has a little sister of 5 years old with Down's Syndrome. He has known them for three years. I was singled out by the mother last year, and pulled aside and THANKED for always acknowledging little Emily. When she sees me she runs to me for a hug. We have a grand old time together, and have since kindergarten. My son has been taught from birth that human bodies are not perfect, and some children have puzzle pieces that didn't fit together all the way when the baby was inside of the mom. He is fiercely protective of her. As he should be.

    Emily's mom, one of the Stylish Moms, no longer belongs to the Clique that she used to belong to. It seems the other Stylish Moms have a hard time looking her in her face, or talking to her, or talking to little Emily. They are more interested in what cheerleading outfits their daughters will be wearing.

    Oddly enough, Lisa the Uncompassionate, was tearfully thanked for treating her like......a human being.

    We are the honorary family members at her Down's Syndrome walk this Saturday.

    Just for your information.

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Topic Summary

has anybody seen the ads on the discovery health channel for the show autism times 6?

they have 6 children and apparently all 6 of the children have autism.

i was doing some reading about this family.. its very sad.

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